TO FURTHER RESEARCH AND RAISE AWARENESS OF

RARE CHROMOSOME AND GENE DISORDERS

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Our Misson

We are raising funds to further research and increase awareness of Rare Chromosome and Gene Disorders.

Dylan's Story

This organization was started on behalf of Dylan Nikol. Dylan, who turned 3 in October, has a rare chromosome disorder called 6p duplication (or partial trisomy 6).

Upcoming Events

We will be hosting our Second Annual Fundraiser Event on Thursday, June 19, 2025 at the Piermont in Babylon, NY.

Ticket sales are NOW OPEN!

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Any size donation makes an impact, and we greatly appreciate your support!

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